I'm wondering what to do after this baby arrives.
Should I breastfeed for 3 weeks? 4? Should I get an MRI and make sure I'm not still having an active lesion from the big Optic Neuritis scare in December, that still has not resolved? Should I get steroid treatment this far away from the initial injury and hope it improves things?
Where do we go now? (Cue Guns & Roses)
I'm asking for advice - moms with MS, how long did you wait to get treatment for your MS after you gave birth? Anyone have flares while pregnant? What did your neurologist recommend?
Thanks, all!
MSloan
'I may have a chronic illness, but I am not sick. My brain just has a self-destruct button.' A young woman with MS.
Showing posts with label infusions. Show all posts
Showing posts with label infusions. Show all posts
Friday, March 4, 2016
Tuesday, March 10, 2015
Gilenya Lookout -
Glad I read this - I'm on Gilenya and couldn't take Tysabri because I'm positive for JC. We'll see what comes of this!
http://www.nationalmssociety.org/About-the-Society/News/Second-Case-of-PML-Reported-in-Person-Receiving-Gi?feed=AllNationalNews
http://www.nationalmssociety.org/About-the-Society/News/Second-Case-of-PML-Reported-in-Person-Receiving-Gi?feed=AllNationalNews
Sunday, April 13, 2014
Lhermitte's Sign
Cool! Being a scientist can make some of the more interesting parts of MS exciting, despite how disconcerting it can feel.
Today, I had my first experience with Lhermitte's sign, a shock-like sensation from the back of the neck through the extremities, brought on by a particular flex of the neck. I had honestly been keeping my eyes out, or senses out rather, since I first read about it after my diagnosis. I wasn't sure I would ever feel it, as many MS patients never do. So it was surprising today to say the least!
I was at the infusion center for my last dose of Solumedrol. The tapering drugs they gave me for this upcoming week are like a bad math problem, but at least they are packaged in such a way that is easy to understand for the most part. But that's irrelevant to this post, back to the sign!
I was leaning forward to grab something on my iPad while at the infusion center, when I noticed that my legs became much more numb when I leaned my neck in. Just bending forward didn't do it, it had to be both the back and the neck, like tucking my chin to my chest. It isn't painful, at least not what I've got not, just strange to manipulate the dizziness I was feeling by moving my neck. When I stand, if I tuck my neck downward, I feel nothing - I can only make it happen while I'm already sitting down. I don't know what my last MRI report said, but this is usually indicative of a lesion in the cervical spinal region. SO I must have one of those too, seeing as the nerves freak out when I move my neck - but still interesting nonetheless.
Have you ever had an interesting experience with a 'typical' ms symptom? Did you know what it was the first time you felt it?
- Margo
Today, I had my first experience with Lhermitte's sign, a shock-like sensation from the back of the neck through the extremities, brought on by a particular flex of the neck. I had honestly been keeping my eyes out, or senses out rather, since I first read about it after my diagnosis. I wasn't sure I would ever feel it, as many MS patients never do. So it was surprising today to say the least!
I was at the infusion center for my last dose of Solumedrol. The tapering drugs they gave me for this upcoming week are like a bad math problem, but at least they are packaged in such a way that is easy to understand for the most part. But that's irrelevant to this post, back to the sign!
I was leaning forward to grab something on my iPad while at the infusion center, when I noticed that my legs became much more numb when I leaned my neck in. Just bending forward didn't do it, it had to be both the back and the neck, like tucking my chin to my chest. It isn't painful, at least not what I've got not, just strange to manipulate the dizziness I was feeling by moving my neck. When I stand, if I tuck my neck downward, I feel nothing - I can only make it happen while I'm already sitting down. I don't know what my last MRI report said, but this is usually indicative of a lesion in the cervical spinal region. SO I must have one of those too, seeing as the nerves freak out when I move my neck - but still interesting nonetheless.
Have you ever had an interesting experience with a 'typical' ms symptom? Did you know what it was the first time you felt it?
- Margo
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