Monday, September 1, 2014

Updating on the Times -

Funny how when things are going well, you are less likely to update on things like that.  But I think it is even more important than when reporting poor condition!

I have made a huge change in my life in the midst of being diagnosed with MS.  I have moved cross-county with my husband and three kitties.  I have started an anti-depressant and the MS medication, Gilenya.  My husband and I have had some tough talks about what the future will be like, as he was hoping we would have started a family by now.  I don't know how I feel about it, as I'm only in my late twenties, but now the medications complicate things a bit.  We shall see how that pans out.

I'm giving an update on what it's like to get your scripts!  When you get MS medication, it comes through a specialty pharmacy, which delivers directly to you.  If you're like me, you'll be lucky and have no copay.  This makes seeing the $3000.00 bill that comes with your medication less shocking - your insurance is already taking care of it.  So heaven forbid you are ever not covered!  But Gilenya comes with a four-week supply, making it all the more baffling that people could 'forget' to take it for three weeks.  Come on, people.

Though I do understand how the scripts can be mixed up; whenever I call the automated service, it never recognizes my number, so I have to wait the agonizing minutes for an operator, who wants all the information under the sun from me every time I re-order.  This can be frustrating, as it is supposed to be an easy process, but being in the Pacific time zone complicates things!  So there's that.  But it's doing it's job (I think) so I can't really complain!

I'm so happy I took the leap to an anti-depressant.  We really have to start talking about mental illness as a sickness that can be treated instead of sweeping it under the rug.  I am very vocal about what my experiences are and have been, which seems to be mostly well-received by those I speak with.  So if you're suffering, speak out!  And do something, even if you think your problem is mild.  If you downplay your own illness, and tell YOURSELF that it is nothing to worry about (even though you are suffering), this is NOT ok - so go do something!

Love to all!  And a good song I posted, hope you go listen.

https://soundcloud.com/margo_aries/trouble-cat-stevens-cover