Ok, I have taken a Norco, I'm real calm.
You know, this medication definitely has a euphoric effect to it after the pain killing kicks in. I haven't taken one in about a week, as I'm trying to make sure I don't end up with a much bigger problem of addiction at the end of all this. But it definitely enhances the usual happiness I feel at the end of the day when I spend time at home with my daughter, my kitties, and my husband. It's like putting a magnifying glass on my usual "happy" level and turning it up. My daughter always makes me smile and laugh, but when I'm "under the influence," I almost want to break down in tears. I want to share it with everyone. I make a lot of Facebook posts when I'm on the Norco.
The best one tonight? I took a bite of my Chocolate Fudge Brownie ice cream and nearly fell over with delight. I haven't eaten that kind of ice cream in a long time. Now, I probably would have super enjoyed it anyway because of what my diet has been forced to do lately, but I know that the extra "kick" I felt was due to the Norco.
I had 2 days of colon prep before my colonoscopy a week ago. This time, the cleanse was successful - probably in no small part from the huge amount of laxatives I took three days before, the start of the prep two days before with the liquid diet, and my diligence to just choke down the rest of that drink. I went in to the appointment totally prepared and calm. I was even joking with the nurse who helped me out - it's amazing how different the experience is when you know that to expect, and that you're actually ready!
My gastroenterologist came to see me before they totally drugged me out, and she let me know that my MRI results showed a "long fistulous track." When I think back to my lower-right quadrant abdominal pain that plagued me in late 2014 (see November 2014 posting for details), I now know that it had to be the beginning of this. I have since read my abdominal MRI report and, while not as easy to understand as the brain MRIs now that I am familiar with the terminology, it seems evident that the end of my small intestines has a hole that leads into a pocket of fluid, and down into the dome of my bladder. The entire top of my bladder is inflamed. There is just NO WAY this all started from this past December when I had some abdominal pain for a week - while that might have been the tail end, I can't think that the great pain I had November 2014 is a coincidence. They never found anything, and I think the ultrasound tech was really concerned during that test because she saw something she couldn't understand.
I'm not stupid. I'm a doctor! HIDE YOUR CONFUSED FACE BETTER, PEOPLE!
Otherwise, I am living with things ok. The biggest trouble is what happens after the colon cleanses - I have to be on a liquid diet for a few days, which makes my bladder feel back to normal! Unfortunately as soon as I introduce solid food again, all my bladder symptoms start back up. It really hurts to urinate again; not at the start of the stream, but at the end, like the contraction is painful against all the inflammation. Debris in the urine, and cloudiness, like before my colonoscopy failure a few weeks ago. Today I had sharp and dull pain along the area where I know the fistula is now (coincidence that its the same spot as a few years ago? I think not!) I'm virtually incontinent when I feel an urge to go - when I actually make it to the restroom, my body just stops wanting to hold it, so I have to get my pants off NOW NOW NOW! So embarrassing. Thank God for pads!
So, on to another day! Love to all,
MSloan
Showing posts with label cramp. Show all posts
Showing posts with label cramp. Show all posts
Thursday, February 22, 2018
Thursday, July 6, 2017
A Mystery Solved
Well, the flare continues. Bummer!
I had hoped that my run with spasticity and a random MS hug would have been the end of it, but it does appear that my whole body is going through some difficult times right now. From head to toe, I feel like a rubber band that has been stretched too tight - every muscle hurts and it truly has the sensation reminiscent of being "just about ready to cramp." Especially in my calves; I worry when I go to sleep that I will be woken suddenly by strong cramps, so I have been sleeping with my toes pointed straight up so that I don't angle my foot too much outward.
I did a lot of reading today, as I had to stay home from work. I became very sick yesterday evening. I have experienced a lot of abdominal cramping over the past couple of weeks, and it came to a pinnacle yesterday - I was in too much pain to eat more than a few bites of dinner, and I couldn't sleep. I woke in the middle of the night and threw up - something I very rarely do. It's been about 3 years since the last time, and even then it was very similar to this. And four years before that, again a similar situation. I hadn't in 15 years before then.
Things really got me thinking - as nothing I was doing seemed to help (not a single drug I took last night made me feel better), was this possibly related to my MS?
Over the past seven years, I have had a myriad of intestinal issues. Looking back, I always describe my "knowing something was wrong" when I started to suffer from daily, almost constant nausea. As someone who very rarely throws up, being nauseated was like torture. No matter how many times I would mention this to doctors, no one seemed to care. Maybe it was my BC, maybe it was the blind UTI, maybe it was stress...pish posh, something was wrong. Two years later when I developed sudden heartburn that was so severe I couldn't swallow, I was told it was because I didn't eat breakfast.
Oy, to say the least.
Today while researching, I found some information on gastroparesis - and bingo. It matches my symptoms perfectly and explains soooo many of my long lasting issues. So while right now I am still very hungry from having too little today, and my stomach still hurts, I feel closer to an answer. Isn't it strange ho having a reason makes it all so much easier to handle?
Love All,
MSloan
I had hoped that my run with spasticity and a random MS hug would have been the end of it, but it does appear that my whole body is going through some difficult times right now. From head to toe, I feel like a rubber band that has been stretched too tight - every muscle hurts and it truly has the sensation reminiscent of being "just about ready to cramp." Especially in my calves; I worry when I go to sleep that I will be woken suddenly by strong cramps, so I have been sleeping with my toes pointed straight up so that I don't angle my foot too much outward.
I did a lot of reading today, as I had to stay home from work. I became very sick yesterday evening. I have experienced a lot of abdominal cramping over the past couple of weeks, and it came to a pinnacle yesterday - I was in too much pain to eat more than a few bites of dinner, and I couldn't sleep. I woke in the middle of the night and threw up - something I very rarely do. It's been about 3 years since the last time, and even then it was very similar to this. And four years before that, again a similar situation. I hadn't in 15 years before then.
Things really got me thinking - as nothing I was doing seemed to help (not a single drug I took last night made me feel better), was this possibly related to my MS?
Over the past seven years, I have had a myriad of intestinal issues. Looking back, I always describe my "knowing something was wrong" when I started to suffer from daily, almost constant nausea. As someone who very rarely throws up, being nauseated was like torture. No matter how many times I would mention this to doctors, no one seemed to care. Maybe it was my BC, maybe it was the blind UTI, maybe it was stress...pish posh, something was wrong. Two years later when I developed sudden heartburn that was so severe I couldn't swallow, I was told it was because I didn't eat breakfast.
Oy, to say the least.
Today while researching, I found some information on gastroparesis - and bingo. It matches my symptoms perfectly and explains soooo many of my long lasting issues. So while right now I am still very hungry from having too little today, and my stomach still hurts, I feel closer to an answer. Isn't it strange ho having a reason makes it all so much easier to handle?
Love All,
MSloan
Friday, June 30, 2017
When Spasticity Strikes Back
Well, it has been a thankful long time since I have felt a need to update my MS blog. Things have been generally well. I quit the job at the sinking ship. I have a new job which will allow me to run my own office very soon - 2 weeks from now, in fact. I won't need to commute from home to work any longer. My daughter is beautiful, smart, and a joy. My husband, despite being left to watch her for several hours as I commute and while I attempt to have a life as a working mother, has no plans to leave me :).
Well, as the weather has proven in the past three weeks in Northern California, it has been bloody hot.
It began about three weeks ago with a particularly hot day. I noticed when I put my baby in the bathtub that as I bent over, I felt the ever-familiar Lhermitte's sign tingling in my feet. It has been about a year since I felt it, briefly, after a long walk. I felt it again and again, every time I moved my head, for about three or four days.
Then, the numbness returned in my legs. Only in pieces, though. Not enough to really raise any red flags.
I had an MS hug earlier this week - started on my left side, tightening beneath my ribcage, then slowly spreading around the front to my right side. By the time I went to bed, I wasn't able to take a full, deep breath without pain. But by morning, it was gone. I figured all of this was due to the heat.
Well, tonight while we were in the grocery store, my husband and I were teasing each other. I specifically remember him poking at my bottom when I suddenly felt a sharp tug in my left foot. It was a cramp. I figured, no big deal, it's just a cramp. But it didn't go away - I had to stop, take off my shoe, and try to massage my foot (in the middle of the store, no less) while I watched my second toe contort as if it was out of place. The muscle contraction was so strong it was moving my toes from the ball of my foot forward! Oh, man, it HURT! I know I seemed like a baby to him, but after five full minutes and no let up, it felt really scary. I couldn't walk on it. I hobbled around one aisle looking for a single item when I gave up and told him I was going to the car.
As I limped out of the store, my left foot started to feel better. However, I was cautious. I called my sister as I had to talk to someone other than my husband, who I am certain thinks I am blowing this out of proportion (I'm not). And guess what? Just as I was looking for my car, dammit if I didn't get a bloody cramp in my other foot! Akkk!!!! I felt like I was being attacked by my own feet. I got in the car and just sat still, massaging my feet and hoping the cramping would stop.
Since we got home, I have been trying to keep off my feet, literally. I am worried that maybe it was my shoes, maybe it was just how I was walking. I feel literally scared of walking right now. I'm afraid if I put weight on my feet, they will spasm. So I am holding still. My anxiety over it is making me walk funny, which I fear will mean I will sprain something. Every time I walk up my stairs, I get a sensation of early cramping in my foot. I am now hating my husband for wanting a house with stairs when I told him a ranch style might be better for my future.
And, I understand better why it may be a good idea to get a handicap placard if it ever happens again. Walking across the parking lot (hobbling, more like) was embarrassing and I just wanted to get to my car.
MS fucking blows. And I was doing so well! Fingers crossed that this was a one-off.
Love, MSloan
Well, as the weather has proven in the past three weeks in Northern California, it has been bloody hot.
It began about three weeks ago with a particularly hot day. I noticed when I put my baby in the bathtub that as I bent over, I felt the ever-familiar Lhermitte's sign tingling in my feet. It has been about a year since I felt it, briefly, after a long walk. I felt it again and again, every time I moved my head, for about three or four days.
Then, the numbness returned in my legs. Only in pieces, though. Not enough to really raise any red flags.
I had an MS hug earlier this week - started on my left side, tightening beneath my ribcage, then slowly spreading around the front to my right side. By the time I went to bed, I wasn't able to take a full, deep breath without pain. But by morning, it was gone. I figured all of this was due to the heat.
Well, tonight while we were in the grocery store, my husband and I were teasing each other. I specifically remember him poking at my bottom when I suddenly felt a sharp tug in my left foot. It was a cramp. I figured, no big deal, it's just a cramp. But it didn't go away - I had to stop, take off my shoe, and try to massage my foot (in the middle of the store, no less) while I watched my second toe contort as if it was out of place. The muscle contraction was so strong it was moving my toes from the ball of my foot forward! Oh, man, it HURT! I know I seemed like a baby to him, but after five full minutes and no let up, it felt really scary. I couldn't walk on it. I hobbled around one aisle looking for a single item when I gave up and told him I was going to the car.
As I limped out of the store, my left foot started to feel better. However, I was cautious. I called my sister as I had to talk to someone other than my husband, who I am certain thinks I am blowing this out of proportion (I'm not). And guess what? Just as I was looking for my car, dammit if I didn't get a bloody cramp in my other foot! Akkk!!!! I felt like I was being attacked by my own feet. I got in the car and just sat still, massaging my feet and hoping the cramping would stop.
Since we got home, I have been trying to keep off my feet, literally. I am worried that maybe it was my shoes, maybe it was just how I was walking. I feel literally scared of walking right now. I'm afraid if I put weight on my feet, they will spasm. So I am holding still. My anxiety over it is making me walk funny, which I fear will mean I will sprain something. Every time I walk up my stairs, I get a sensation of early cramping in my foot. I am now hating my husband for wanting a house with stairs when I told him a ranch style might be better for my future.
And, I understand better why it may be a good idea to get a handicap placard if it ever happens again. Walking across the parking lot (hobbling, more like) was embarrassing and I just wanted to get to my car.
MS fucking blows. And I was doing so well! Fingers crossed that this was a one-off.
Love, MSloan
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