It's been a few months, and I've realized something.
My medical history is a full one, for sure. This year alone, I will have trumped what most people experience in their medical lives until they reach their mid to late 60's. In the last four years, I have learned more about myself and my disease(s) than my medical professionals typically know off the bat. It has made me a better clinician to my patients, and it has made me more empathetic as a human.
But most importantly, I feel it is vital to stress one fact: my life is not hard.
I say this now, having lived a hard life. Sure, I can sew sonnets of woe for my past, I'm even writing a book, and I could elicit an "awww" response with a genuine story every day if I wanted to. But I don't. Because as hard as my life has been, I owe it to the world not to complain about it - and because I know that, right now, it is not hard.
I have a husband who loves me, and who is so patient with me and my many idiosyncracies. I find joy in the stupidest things - from finding a clutch of snail eggs on my aquarium wall, to watching my bunnies leap over each other in the yard. I pulled the weeds in the front of my home today, feeling pride that I have a place to keep nice. I admired my daughter for minutes on end this evening, watching her jump around in her pajamas and yell out colors. I love watching her grow. I am at peace. And, most of all, I am happy.
I know a large part of my happiness is due to my medication - when I was stricken with anxiety 24/7, I could count the days that I felt well because they were so few that I had to take stock of them. Just before I was diagnosed with MS was one of these times - and it came crashing to a halt because of a public panic attack. I don't have those any more. Things have somewhat swung the other way now, to tell you the truth - I watch emotional films and listen to sad songs and do not shed a tear. I haven't really cried in months. I welled up at the end of "13 Going On 30" the other day for about a minute - then it dried up. I don't expose myself to feelings of anxiety or sadness on purpose any more, and I think this is a big reason why my brain doesn't process those emotions as readily as it used to.
I am very pleased that, at 30 years old, I am content with where I am in life. I love my job. I love my family. I love my home, my pets, my plants. I even like myself most days, a huge change from where I have been.
No - I am not healthy. But my life isn't hard.
I know plenty of healthy folks who are beautiful, put-together, and miserable.
There is a balance of life - what we are given, and what we do with it. I choose to make the most of what I have been given - even if that set of cards seems like a shit hand at first. You never know what will be wild!
Love all, MSloan
'I may have a chronic illness, but I am not sick. My brain just has a self-destruct button.' A young woman with MS.
Showing posts with label get help. Show all posts
Showing posts with label get help. Show all posts
Sunday, July 8, 2018
Sunday, October 25, 2015
About Something Else
I don't want to make my mother suffer. That isn't what I want.
But I can't feel sympathy and compassion for someone who sends me these things in the middle of the night, but refuses to acknowledge that she needs help:
"monswters," "unrelenting evcil," "demon death to alkld humans," "died iun ny9our samddorasl msewage," "dlalkl oifd them murdsere3rklesdg."
I AM DIRECTLY COPY/PASTING HERE. My mother is a master typist. This person... needs help!!
I can't get her help if she won't seek it herself. I can't get her to stop sending me the hate mail and I worry too much for her safety to stop checking on it to make sure she ISN'T claiming to have hurt herself. Because just minutes after the last, obviously banged-on-the-keyboard message, was this very clear one:
"the best one is this and it is SO TRUE that in my nightmares I KNOW THIS TRUTH. there is NOTHING you people will not do to ruin my poor little life. and I mean there is NOTHING TOO LOW for you TO DO."
These messages are NOT being instigated by anything at all. I haven't written her back in days, because they upset me so - most of my responses are answered with barrages of nasty messages in return instead of just replying to whatever it is that I said. My mother is the only one who's never seen an ultrasound of my baby. She doesn't know my doppler came in, because she wouldn't answer even if I would call. But at 4 AM, I got a string of disgusting, disorienting, misspelled and disturbing messages about how myself and my sister are putting her in danger by having a relationship with our father. Who, by the way, she thinks killed his friend, her grandson, and a random old woman who lived near his regular bar.
My father is not a murderer. I can't get her institutionalized without calling the police, but nothing changed and I mean NOTHING changed after her last 72 hour hold. It has only gotten worse.
What... what do I do?
MSloan
But I can't feel sympathy and compassion for someone who sends me these things in the middle of the night, but refuses to acknowledge that she needs help:
"monswters," "unrelenting evcil," "demon death to alkld humans," "died iun ny9our samddorasl msewage," "dlalkl oifd them murdsere3rklesdg."
I AM DIRECTLY COPY/PASTING HERE. My mother is a master typist. This person... needs help!!
I can't get her help if she won't seek it herself. I can't get her to stop sending me the hate mail and I worry too much for her safety to stop checking on it to make sure she ISN'T claiming to have hurt herself. Because just minutes after the last, obviously banged-on-the-keyboard message, was this very clear one:
"the best one is this and it is SO TRUE that in my nightmares I KNOW THIS TRUTH. there is NOTHING you people will not do to ruin my poor little life. and I mean there is NOTHING TOO LOW for you TO DO."
These messages are NOT being instigated by anything at all. I haven't written her back in days, because they upset me so - most of my responses are answered with barrages of nasty messages in return instead of just replying to whatever it is that I said. My mother is the only one who's never seen an ultrasound of my baby. She doesn't know my doppler came in, because she wouldn't answer even if I would call. But at 4 AM, I got a string of disgusting, disorienting, misspelled and disturbing messages about how myself and my sister are putting her in danger by having a relationship with our father. Who, by the way, she thinks killed his friend, her grandson, and a random old woman who lived near his regular bar.
My father is not a murderer. I can't get her institutionalized without calling the police, but nothing changed and I mean NOTHING changed after her last 72 hour hold. It has only gotten worse.
What... what do I do?
MSloan
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